Life Resources

These links can help you find organizations with a broad interest in health issues, often with a unique .ethnic or cultural focus, as well as those that can help with money or legal problems you may have.

Health

 

  • Achieving Balance in State Pain Policy: A Progress Report Card (CY 2012) 
    The PPSG is pleased to announce the release of Achieving Balance in State Pain Policy: A Progress Report Card (CY 2012).  This report contains a grade for each state and the District of Columbia, which represents the extent that state policies can support pain management and patient care.
  • Advanced Education for Nursing
  • Nursing programs are popping up throughout the country because nurses are in such high demand right now. No matter where you live or what you want to do as a nurse, you can find an educational program to help you fulfill your dreams. 
  • Action on Pain
    Action on Pain takes an active role in providing advice and support to both people living with pain and those affected by it's intrusive effects on daily life. Working closely with other organizations both in the UK and Internationally, the team strives to raise the profile of pain with politicians, NHS Managers and health professionals.
  • AgrAbility Project
    Helps Farmers and Ranchers with Disabilities and Chronic Health Conditions Find Solutions that Change Their Lives. Every year, hundreds of thousands of people working in agriculture are injured or experience the on-set of chronic health conditions that limit their abilities to continue farming.
  • Alliance for Aging Research
    Alliance for Aging Research is the nation's leading citizen advocacy organization for improving the health and independence of Americans as they age. The Alliance was founded in 1986 to promote medical and behavioral research into the aging process. Since then, and as the explosion of the Senior Boom approaches, the Alliance has become the voice for Baby Boomer health by developing, implementing and advocating programs in research, professional and consumer health education and public policy.
  • Alliance for the Rational Use of NSAIDS
  • The Alliance for Rational Use of NSAIDs is a public health coalition dedicated to educating people about the safe and appropriate use of nonsteroidal anti-inflammatory drugs (NSAIDs). 
  • Australian Pain Management Association
    APMA's website aims to offer pain management options and information for  people with pain, their families and friends. Health care professionals will also find the site interesting and informative.
  • Buying Medical Products Online (a service of the FDA)
    Information about things to consider when buying medical products online.
  • Canadian Pain Coalition, Canada
    The Canadian Pain Coalition is a partnership of patient pain groups, health professionals who care for people in pain, and scientists studying better ways of treating pain.
  • Cleveland Clinic
    Ranked one of America's top hospitals by U.S. News & World report.
  • CISCRP
    The Center for Information and Study on Clinical Research Participation (CISCRP) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process.
  • Clinical Trials Transformation Initiative (CTTI)
    The Clinical Trials Transformation Initiative (CTTI) is a public-private partnership to identify practices that will increase the quality and efficiency of clinical trials.  CTTI now comprises more than 60 organizations from acrosss the clinical trial enterprise. 
  • Consumer Pain Advocacy Task Force (CPATF)
    Consumer Pain Advocacy Task Force (CPATF) is comprised of national leaders and decision-makers from 16 consumer-nonprofit organizations that are dedicated to patient well-being and supporting the use of effective methods for pain treatment. The State Pain Policy Advocacy Network (SPPAN) first convened these leaders in March 2014 to organize a collective action effort to benefit people with pain.
  • Danish Chronic Pain Association
    Danish Chronic Pain association features resources and support.
  • Dermatlas Online Digital Dermatology Image Library
    The purpose of this site is to enable health care professionals, parents, and patients to access high quality dermatology images for teaching purposes.
  • EM Painline
    EM Painline is a resource for those striving to improve the management of pain in our emergency departments. Our goal is to close the gap between existing knowledge and daily pain management practice. By improving access to current research literature pertaining to emergency medicine practice as well as to other tools and resources, and by building a network of emergency medicine researchers, practitioners and educators dedicated to this goal, we will move toward achieving a truly "painless" Emergency Department.
  • End-of-Life Nursing Consortium
    The End-of-Life Nursing Education Consortium (ELNEC) project is a national education initiative to improve end-of-life care in the United States. The project provides undergraduate and graduate nursing faculty, CE providers, staff development educators, specialty nurses in pediatrics, oncology, critical care and geriatrics, and other nurses with training in end-of-life care so they can teach this essential information to nursing students and practicing nurses.
  • Evidence-based Health Care?
    What is Evidence-based Health Care? Evidence-based Health Care (EBH) is a concept of determining a patient’s treatment by combining balanced amounts of scientific evidence, physician judgment and expertise, and patient experience. Scientific Proof + Doctor’s Expertise + Patient’s Experiences = Evidence-based Health Care
  • The Exchange
    The Exchange is a partnership formed to exchange information and resources about health communication and to share multilingual health materials. The Exchange resources and information are open to everyone, but our online library of translated health materials and our forum are for members only. Below, find more information about how our members services work.
  • Faith in Action
    Faith in Action is an interfaith volunteer caregiving initiative of the Robert Wood Johnson Foundation. Local Faith in Action programs bring together volunteers from many faith to work together to care for their neighbors who have long-term health needs. Faith in Action volunteers come from churches, synagogues, mosques and other houses of worship, as well as the community at large.
  • FDA Voice
    FDA's official blog brought to you from FDA's senior leadership and staff stationed at home and abroad - sharing news, background, announcements and other information about the work done at the FDA on behalf of the American public.
  • Fight4rx
    Fight4Rx is a non-partisan grassroots effort of the National Community Pharmacists Association aimed at educating patients about the value of their local community pharmacy. Pharmacists play a role every day in the lives of patients by improving health care while reducing costs. With health care issues taking center stage in Washington, DC, it is vital that patients remain engaged in protecting their access to safe and affordable medicine. Fight4Rx provides you with the tools you need to learn about the changing health care market, and how your community pharmacy plays a key role.
  • Families Nurse Practioners Programs
    It’s easy to overlook how the health of a family fits together and to simply focus on individual health. That said, families are units, so the healthy (or unhealthy) choices made by one member can have a significant impact on everyone else in the unit. With rising healthcare costs, increasingly busy schedules, and high stress lifestyles, keeping a family healthy is no easy task. Luckily, there are many great resources available to parents looking to improve their family’s health. The following list of 100 fantastic family health resources is also great for Family Nurse Practitioners who would do well to recommend these resources to their patients. Additional Medical Assistant programs click here
  • Families USA
    Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, we have earned a national reputation as an effective voice for health care consumers for 25 years.
  • FDA
    The FDA is responsible for protecting the public health by assuring the safety, efficacy, and security of human and veterinary drugs, biological products, medical devices, our nation's food supply, cosmetics, and products that emit radiation. The FDA is also responsible for advancing the public health by helping to speed innovations that make medicines and foods more effective, safer, and more affordable; and helping the public get the accurate, science-based information they need to use medicines and foods to improve their health.
  • German Pain League
    Resources and Information about Pain in German.
  • Health Assistance Partnership
    Health Assistance Partnership serves consumer health assistance programs as well as other non-profit health care organizations that help patients solve problems with health care access and health insurance.
  • Health Finder
    healthfinder.gov is an award-winning Federal Web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder.gov has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder.gov links to carefully selected information and Web sites from over 1,500 health-related organizations.
  • Health Finder - Spanish
    healthfinder.gov is an award-winning Federal Web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder.gov has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder.gov links to carefully selected information and Web sites from over 1,500 health-related organizations, in spanish.
  • Healthy Aging Program 
    The Healthy Aging Program at the Centers for Disease Control and Prevention has released a new report, The State of Aging and Health in American 2013.
  • Healthy People 2010
    Healthy People 2010 challenges individuals, communities, and professionals—indeed, all of us— to take specific steps to ensure that good health, as well as long life, are enjoyed by all.
  • Intercultural Cancer Council
    The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
  • International Alliance of Patient Organizations
    International Alliance of Patient Organizations: IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world. Our members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
  • International Integrative Medicine Day
    IIM Day inspires worldwide dialog, education, collaboration, research initiatives and programming about medicine that is patent-centered, holistic, economically and environmentally sustainable, and conscious of integrating different global medical systems.
  • Israel Society for Fighting Pain
    Israel Society for Fighting Pain aims to raise awareness of chronic pain as a disease. Amongst our goals are to provide support, treatment options, medical researches, advices and information to pain sufferers to improve their quality of life.
  • Joint Commission on Accreditation of Healthcare Organization (JCAHO)
    An independent, not-for-profit organization, The Joint Commission accredits and certifies more than 15,000 health care organizations and programs in the United States. Joint Commission accreditation and certification is recognized nationwide as a symbol of quality that reflects an organization's commitment to meeting certain performance standards.
  • Know Your Dose
    Know Your Dose – New Campaign on Appropriate Use of AcetaminophenAcetaminophen is found in more than 600 different prescription and over-the-counter medicines, including pain relievers, fever reducers, and sleep aids as well as cough, cold, and allergy medicines. On prescription labels, acetaminophen is sometimes listed as “APAP,” “acetam,” or other shortened versions of the word. When used as directed, acetaminophen is safe and effective, but there is a limit to how much you can take in one day. Taking more acetaminophen than directed is an overdose and can lead to liver damage.The Know Your Dose campaign is raising awareness of this important topic by educating patients and consumers on how to appropriately use medicines that contain acetaminophen. [ORGANIZATION] is proud to partner with the Know Your Dose campaign to remind patients and consumers to always read and follow the labels of their medicines and to never take two medicines that contain acetaminophen at the same time. The campaign’s website, KnowYourDose.org, offers a list of common medicines that contain acetaminophen, tips on reading over-the-counter and prescription labels, and more.

    You Can Help!
    We invite you to join with us to spread the word!
    • Order a FREE Know Your Dose kit to display and distribute information cards and posters in waiting rooms, pharmacies, health centers, and more.
    • Air the Know Your Dose video in waiting rooms, pharmacies, clinics, and health fairs.
    • Download talking points on acetaminophen to use with patients and consumers.
  • Life Challenges
    For those facing a life challenge, such as illness, relationship/family issues, job loss, death, addiction or abuse, Life Challenges offers support to those dealing with these issues.
  • Mayday Fund
    Watch this short video featuring Dr. Diane E. Meier, director of the Center to Advance Palliative Care, as an example of clear communication about health and medical issues.
    The Mayday Fund supported the development of this video to help health care professionals understand the importance of good communication as well as excellent treatment when it comes to pain and palliative care.
  • Mayo Clinic
    Mayo Clinic is a not-for-profit medical practice dedicated to the diagnosis and treatment of virtually every type of complex illness. Mayo Clinic staff members work together to meet your needs. You will see as many doctors, specialists and other health care professionals as needed to provide comprehensive diagnosis, understandable answers and effective treatment.
  • MedSun (Medical Product Safety Network)
    Medical Product Safety Network (MedSun) improves FDA’s understanding of problems with the use of medical devices so that the FDA, healthcare facilities, clinicians, and manufacturers can better address safety concerns. The MedSun Web page is a newsletter-based website which provides monthly updates about timely medical device issues that may impact patient safety. This website also provides public access to de-identified reports sent into the MedSun program, in addition to important safety information to MedSun participants and to the national clinical community about reported problems. You will see the current newsletter content on this Web page, or you may visit the MedSun Newsletters page to search past MedSun Newsletters.
  • Mexican Association for the Study and Treatment of Pain
    La Asociación Mexicana para el Estudio y Tratamiento del Dolor es una institución formada por médicos, investigadores básicos o clínicos y otros profesionales de la salud.
  • Musical Medical Group for Veterans 
  • Military OneSource
    Military OneSource is a valuable tool for military members and their families.
  • National Alliance for Spanish Health
    The National Alliance for Hispanic Health (the Alliance) is the premier science-based nonprofit 501(c)(3) organization that focuses on improving the health and well-being of Hispanics. As the nation’s action, advocacy, and research forum for Hispanic health, we push for health care reform that creates the best outcomes for all, ensure accountability, and inform and mobilize consumers. We advocate on behalf of Hispanics, help health and human service providers deliver quality, culturally-proficient care, and promote philanthropy. Equally, we encourage culturally-inclusive research to produce better-informed conclusions and decision making, and advance uses of technology that benefit the environment.
  • National Black Deaf Advocates
    The mission on the National Black Deaf Advocates is to promote leadership development, economic and educational opportunities, social equality, and to safeguard the general health and welfare of Black deaf and the heard of hearing.
  • National Community Pharmacists Association
    The National Community Pharmacists Association (NCPA®) represents the interests of America's community pharmacists, including the owners of more than 23,000 independent community pharmacies, pharmacy franchises, and chains.
  • National Consumer League
    NCL provides government, businesses, and other organizations with the consumer's perspective on concerns including child labor, privacy, food safety, and medication information.
  • National Institute of Health
    NIH is the nation's medical research agency - making important medical discoveries that improve health and save lives.The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people's health and save lives, NIH scientists investigate ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases.
  • National Senior Citizen Law Center
    The National Senior Citizens Law Center is a non-profit organization whose principal mission is to protect the rights of low-income older adults. Through advocacy, litigation, and the education and counseling of local advocates, we seek to ensure the health and economic security of those with limited income and resources, and access to the courts for all.
  • National Urban League
    Established in 1910, The Urban League is the nation's oldest and largest community- based movement devoted to empowering African Americans to enter the economic and social mainstream. Today, the National Urban League, headquartered in New York City, spearheads the non-partisan efforts of its local affiliates. There are over 100 local affiliates of the National Urban League located in 35 states and the District of Columbia providing direct services to more than 2 million people nationwide through programs, advocacy and research.
  • National Fibromyalgia & Chronic Pain Association
    The National Fibromyalgia & Chronic Pain Association unites patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses.
  • National Women's Health Resource
    The not-for-profit National Women's Health Resource Center (NWHRC) is the leading independent health information source for women. NWHRC develops and distributes up-to-date and objective women's health information based on the latest advances in medical research and practice.
  • The National Working Group on Evidence-Based Healthcare
    The National Working Group on Evidence-Based Healthcare: Keeping Science Relevant to the Individual. Ensuring appropriate evidence-based healthcare policy through education and advocacy.
  • NeurologyChannel.com
    Information and resources about neurological pain.
  • Office of Research on Women's Health (ORWH)
    The Office of Research on Women’s Health (ORWH) at the National Institutes of Health (NIH) is delighted to provide you with “A Primer for Women’s Health: Learn about Your Body in 52 Weeks.” This online resource aims to promote healthy lifestyles by offering practical guidelines and strategies women can use every day to reduce the risk of developing illnesses or conditions that can affect your quality of life. 
  • Painconsortuim
  • PAIN Exhibit
    The PAIN Exhibit is an educational, visual arts exhibit from artists with chronic pain with their art expressing some facet of the pain experience. The mission is to educate healthcare providers and the public about chronic pain through art, and to give voice to the many who suffer in abject silence.
  • Pain Association Scotland
    Joining a support group offers the opportunity to be listened to, to talk about how you feel, hear how others cope with similar problems and learn actively to control pain. Pain Association offers groups across the country.
  • Pain Concern
    We focus on the UK, providing a helpline,leaflets, and a magazine, Pain Matters. Our most recent project an internet radio programme, Airing Pain, provides reliable information and support that is relevant to all people living with chronic pain. Because these programmes remain accessible as podcasts the information and support is availabe when it is needed. We have already received very positive feedback from listeners in Australia and Europe. Thus, we are sending out information about Airing Pain to a number of international bodies working in chronic pain and hope that you could add a link to your website or perhaps mention the programmes in your newsletter.
  • Pain Hurts Canada
    The Canadian Pain Coalition is a Partnership of patient pain groups, health professionals who care for people in pain, and scientists studying better ways of treating pain. This partnership began in May 2002 as an initiative of the Canadian Pain Society, which remains an active partner.
  • Pain Treatment Topics
    Information and education resources are described for the benefit of people with pain. Pain Treatment Topics does not provide medical advice, diagnosis, or treatment.
  • PainACTION
    PainACTION is a self-management program designed to educate and empower people with chronic pain by offering access to personalized pain management strategies. Features include: an online pain journal to track pain and print reports; information about evidence-based pain treatments and research findings; interactive tools for self-assessment and self-help; peer stories; and the latest pain-related news.
  • PainExhibit.com
    The PAIN Exhibit is an educational, visual arts exhibit from artists with chronic pain with their art expressing some facet of the pain experience. The mission is to educate healthcare providers and the public about chronic pain through art, and to give voice to the many who suffer in abject silence.
  • Physicians for Patients
    Physicians for Patients is a physician-enhanced support community for those with long term health conditions. A place to give one another support, to vent frustrations, and to give each other advice. There is a dedicated physician specialist as part of each community to answer any questions and to help guide discussions. Patients, family, and friends are encouraged to talk to one another.
  • PleuralMesothelioma.com
    Part of our mission at PleuralMesothelioma.com is to provide current, reliable data on all topics relating to pleural mesothelioma cancer. We are dedicated to compiling the latest and most up-to-date information on pleural mesothelioma and offer a number of resources to those coping with the pulmonary cancer. From treatment options to top doctors and the best cancer centers in the United States, PleuralMesothelioma.com is a one-stop resource for pleural mesothelioma patients and their families.
  • Poison Prevention Week Council
    In 2012, the Poison Prevention Week Council turned 50 Years Old! The Poison Prevention Week Council provides information about the events associated with National Poison Prevention Week, the steps that you can take to help prevent accidental poisonings and tips for promoting community involvement in poison prevention.
  • Public Health Online - Degrees and Career Paths
    Public Health Online, a non-commercial organization, came to be in 2013 with the mission to provide public health community resources or those considering a career in public health or those currently employed in the industry. Our free materials and tools span topics such as jobs and careers, educational program options and financial aid, pre-professional experience, and state and local government public health resources. We have been featured by several local and state public health offices and top universities across the U.S. Campus and Online Master Degrees In Public Health, Public Health/MPH Online: Pre-Professional Experience Resources, and Public Health Job Resources
  • Returning Veterans to Agriculture Project
    This site is dedicated to gathering and communicating resources for veterans who are interested in returning to or starting careers in agriculture and in rural communities. America’s farmers and rural communities are vitally important to our nation’s economy, producing the food, feed, fiber and fuel that continue to help us grow.  America needs generations of leaders in American agriculture to continue our position as the number one agricultural country in the world.
  • Samaritan Hospice
    Samaritan is a not-for-profit organization that contributes to the health and well-being of our community. We provide unparalleled services with respect, dignity, and compassion for all people affected by serious, progressive illness or grief. Samaritan is the leader in hospice, palliative care, grief support, education, advocacy and other life-enhancing services.
  • Script Your Future
    Having a serious long-term health problem can take away your chances of a long and full life with your family – if you let it. The Script Your Future campaign is designed to help you take back your future by helping you take your medicine as directed. Script Your Future is here to help people like you manage health problems such as diabetes, COPD, asthma, high blood pressure or high cholesterol.
  • The Soldiers Project
    We provide free counseling and support to military service members who have served or who expect to serve in the Iraq and/or Afghanistan conflicts and to veterans of those conflicts. We see active duty as well as members of activated Reserve or Guard units. In addition, our services are available to the families and other loved ones of service members. We provide help to service members and families struggling with issues related to the overwhelming trauma of war including the cycle from pre-deployment to deployment to homecoming and re-entry to civilian life. Our services are readily accessible and entirely free of charge. We do not report to any government agency.
  • Strength for Caring
    The Johnson & Johnson Caregiver Initiative is a pioneer in the emerging field of family caregiver support and StrengthForCaring.com (SFC) is the cornerstone of this important program. SFC is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.
  • Travel With Pain
    This is a blog written by a person with to helps people with chronic pain and hidden disabilities get out of their homes and see the world--or at least the next town over. Practical tips and personal stories invite readers to prepare properly, pack well, and find their own journeys.
  • US Pain Foundation
    U.S. Pain Foundation is a 501 (c)3 non-profit organization dedicated to serving those who live with pain conditions and their care providers. Founded in 2006 by a fellow person with pain, it is the mission of the organization to connect, inform, empower and advocate for the pain community. U.S. Pain is here to help those who live with pain and their care providers find resources and inspiration.  
  • VetsinPain
    The mission of the ACPA Veterans Program (VIP) is to assist US Veterans who live with pain.. We recognize Veterans have specific needs and the American Chronic Pain Association has developed a program to provide peer support and education in pain management. 
  • We Connect Now
  • The website was developed to connect and integrate college students with disabilities as a virtual community with a voice on important issues with particular emphasis on college students and access to higher educaiton and employment. The WE Connect Now website has been up and serving college students with disabilities since Paril of 2008.

Legal

  • American Society of Law, Pain and Ethics
    Offer access to their research projects on pain undertreatment, which have been funded by the Mayday Fund, as well as The Connecticut Statewide Pain Management Study supported by the Donaghue Medical Research Foundation.
  • Pain and Policy Study Group
    The Pain and Policy Studies Group has issued Achieving Balance in State Pain Policy: A Progress Report Card, which provides a letter grade for each State based on the quality of its policies (laws, regulations, guidelines) which influence pain management. Click here to see how your state ranks.
  • Pain and the Law
    This site has been developed by the Center for Health Law Studies at Saint Louis University and the American Society of Law, Medicine and Ethics under a grant from The Mayday Fund.

Financial

  • California Help Center at the Department of Managed Health Care
    Californians have the strongest patient's rights laws in the nation. The Help Center at the Department of Managed Health Care is here to explain your health care rights and help you understand how to use your health care benefits. We make sure that health plans follow the law and address member complaints on time.
  • Center for Medicare Advocacy, Inc.
    The Center for Medicare Advocacy, Inc. is a national non‑profit, non-partisan organization that provides education, advocacy, and legal assistance to help older people and people with disabilities obtain Medicare and necessary health care. The Center is headquartered in Connecticut with offices in Washington, DC and throughout the country.
  • Families USA
    Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, we have earned a national reputation as an effective voice for health care consumers for 25 years.
  • Needy Meds
    NeedyMeds is a 501(3)(c) non-profit with the mission of helping people who cannot afford medicine or healthcare costs. The information at NeedyMeds is available anonymously and free of charge.
  • Patient Advocate Foundation
    Seek to provide avenues of access to insurance funding for evolving cancer therapies, therapeutic agents and devices deemed medically efficacious by the medical and scientific communities through legislative reform.
  • RxAssist
    RxAssist is a pharmaceutical access information center created by Volunteers in Health Care (VIH), a national resource center for safety net organizations. VIH operates out of the Brown University Center for Primary Care and Prevention, based at Memorial Hospital of Rhode Island, a Brown Medical School teaching and research facility located in Pawtucket, Rhode Island.

Important:

This information should not be used as a substitute for necessary consultations with a qualified health care professional to meet your individual needs. Always consult a medically trained professional with questions and concerns you have regarding your medical condition.

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Development of this new ACPA web site was made possible through an unrestricted educational grant from Medtronic Foundation and Purdue Pharma.

Medtronic Foundation and Purdue have no influence on the editorial content of the site. Ongoing funding also comes from memberships/donations from a range of individual contributors.

Last Updated: 10/30/2014
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