Webinar “How to benefit from clinical trials and what happens after them? A patient’s story.”

When:
September 5, 2018 all-day
2018-09-05T00:00:00-07:00
2018-09-06T00:00:00-07:00

Webinar “How to benefit from clinical trials and what happens after them? A patient’s story.”

Wednesday, September 5, 2018 04:00 PM Europe/London

Agenda

This educational webinar is organized by FindMeCure Foundation and Chronic Pain Irelandwith the kind support from the International Alliance of Patients’ Organizations as a part of the Pain Awareness Month established by the American Chronic Pain Association.

You will benefit from this webinar, if:

  • you are a patient having a condition but you are not happy with your current treatment or you have none;
  • you are looking to find out more about the treatments in research;
  • you are a part of a patient community/organization and want to help your members save their time and efforts.

You will learn:

  • how new drugs are being tested and approved and you can have access to them;
  • what rights and obligations you have;
  • what happens after the clinical trial is completed. A story from a patient who took part in a clinical trial.

SPEAKERS

Deirdre Ryan. Deirdre is a Chairperson of Chronic Pain Ireland and has contributed to the work of the organization through the delivery of CPI Self-Management programme. She has lived with fibromyalgia and rheumatoid arthritis. She is also a student Psychotherapist & Counsellor volunteering within the mental health sector, while completing her studies.

Maya Zlatanova. Maya has more than 10 years of experience in the clinical research industry and has done regulations training to some of the biggest pharma companies, as well as to the United Nations, Ministries of Health etc. She is currently a co-founder of FindMeCure – a global platform transforming the way people find, understand and join clinical trials and is a Board Member of the Patient Recruitment and Engagement Committee at the Alliance for Clinical Research Excellence and Safety (ACRES).

Allison Bengel. Allison is a patient with Complex Regional Pain Syndrome in her right eye, right ulnar side of my arm, and her left foot. She has been battling this condition for several years with various types of therapies until she found out about a clinical trial exploring a new drug that could decrease the pain significantly. She is a scientist herself and a very active blogger.

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